RARE Registry Oversight Committee 2022-2023
CO-PRINCIPAL INVESTIGATORS
Joan Levy, PhD
Melanoma Research Alliance
Maryam Asgari, MD, MPH
University of Colorado Anschutz School of Medicine
SCIENTIFIC & PATIENT ADVISORS
Boris Bastian, MD
University of California San Francisco
Trena Brown
Patient Advocate
Elizabeth Buchbinder, MD
Dana-Farber Cancer Institute
Chris Carr
Patient Advocate
Richard Carvajal, MD
Columbia University-New York Presbyterian Hospital
Judith Colin
Patient Advocate
Julie Dewey
Patient Advocate
Rachel Fischer, PhD
Melanoma Research Alliance
Marc Hurlbert, PhD
Melanoma Research Alliance
Patricia Janiak
Patient Advocate
Amy Jardon
Patient Advocate
Jason Luke, MD
University of Pittsburgh Medical Center
Yevgeniy ‘Eugene’ Semenov, MD, MS
Massachusetts General Hospital
Sapna Patel, MD
The University of Texas MD Anderson Cancer Center
David Marx
Patient Advocate
Alex Shoushtari, MD
Memorial Sloan Kettering Cancer Center
Janet Yannelli
Patient Advocate
Eileen Walther
Patient Advocate
Jonathan Swingle
Patient Advocate
Iwei Yeh, MD, PhD
University of California San Francisco
J.B. Ward
Patient Advocate
Alfonso Waller, MD
Patient Advocate
David Marx — Melanoma Patient Advocate, Joan Levy, PhD — MRA Chief Science Officer, Pat Janiak — Melanoma Patient Advocate, & Ken Billett — Melanoma Patient Advocate